Mothers’ Lived Experiences of Autistic Adults’ Challenges, Community Support Gaps, and Pathways to Independence – A Phenomenological Study"
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1
KING SAUD BIN ABDULAZIZ UNIVERSITY FOR HEALTH SCIENCES, COLLEGE OF NURSING, JEDDAH, SAUDI ARABIA
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KING ABDULLAH INTERNATIONAL MEDICAL RESEARCH CENTER (KAIMRC), JEDDAH, SAUDI ARABIA
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MENOUFIA UNIVERSITY, QISM SHEBEEN EL-KOM, EGYPT
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ALEXANDRIA UNIVERSITY, ALEXANDRIA, EGYPT
Submission date: 2025-03-08
Acceptance date: 2025-07-12
Publication date: 2025-08-30
Corresponding author
Amal I Khalil
Nursing Department, King Saud Bin Abdulaziz University for Health Sciences, College of Nursing, Jeddah,, Saudi Arabia
Wiadomości Lekarskie 2025;(8):1476-1487
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ABSTRACT
Aim:
This research sought to investigate the obstacles encountered by Saudi mothers with adult autistic children in promoting autonomy and meaningful relationships. Additionally, it aimed to assess the available community resources and assistance for these mothers, as well as gather their recommendations for enhancing support systems.
Material and methods:
A phenomenological study design was used among 17 autistic mothers who were conveniently selected. The Focus group discussion guide included four open-ended questions to define mothers’ challenges, as well as their coping and adaptation strategies for autistic adults’ independent lives.
Results:
The thematic analysis highlighted six main themes and their subthemes. The subjects’ response themes started with autism detection among children and went behind challenges and adaptation and coping mechanisms to create an independent living approach for autistic adults
Conclusions:
Mothers emphasized the need for comprehensive support systems, including early intervention, specialized resources, and trained caregiver. In addition, community engagement , acceptance and comprehensive family support are crucial.